This directory lists organizations, websites, hotlines, and programs that provide support for prostate cancer patients, survivors, and their families. All resources listed are reputable and well-established.
Major Prostate Cancer Organizations
Prostate Cancer Foundation (PCF)
- Website: pcf.org
- What they offer: Research funding, patient education, clinical trial finder, treatment guides, videos
- Patient guide: "The Science of Living Well, Beyond Cancer"
- Phone: 1-800-757-CURE (2873)
ZERO — The End of Prostate Cancer
- Website: zerocancer.org
- What they offer: Free support groups (in-person and virtual), mentorship program (one-on-one peer support), educational resources, advocacy, run/walk events
- ZERO360 Program: Free case management for financial assistance, insurance navigation, and emotional support
- Phone: 1-888-245-9455
Us TOO International Prostate Cancer Education and Support
- Website: ustoo.org
- What they offer: Free support groups across the US and internationally, educational materials, peer-to-peer support, spouse/partner resources
- Phone: 1-800-808-7866
Prostate Cancer Research Institute (PCRI)
- Website: pcri.org
- What they offer: Helpline staffed by professionals, educational conferences, detailed treatment information, Prostate Cancer Staging Guide
- Helpline: 1-310-743-2116
Movember Foundation
- Website: movember.com
- What they offer: Research funding, awareness campaigns, TrueNTH program (quality of life resources for prostate cancer patients)
General Cancer Support Organizations
American Cancer Society (ACS)
- Website: cancer.org
- What they offer: 24/7 helpline, treatment information, lodging assistance (Hope Lodge), rides to treatment (Road to Recovery), online support communities
- Phone: 1-800-227-2345 (24/7)
Cancer Support Community
- Website: cancersupportcommunity.org
- What they offer: Free counseling, support groups, education, Cancer Support Helpline
- Helpline: 1-888-793-9355
CancerCare
- Website: cancercare.org
- What they offer: Free professional counseling (phone, online, in-person), support groups, financial assistance, educational workshops
- Phone: 1-800-813-4673
Livestrong Foundation
- Website: livestrong.org
- What they offer: Free cancer navigation services, fertility preservation resources, insurance guidance
National Cancer Institute (NCI)
- Website: cancer.gov
- What they offer: Comprehensive cancer information, clinical trial search (cancer.gov/clinicaltrials), Cancer Information Service
- Phone: 1-800-4-CANCER (1-800-422-6237)
Mental Health and Emotional Support
988 Suicide and Crisis Lifeline
- Phone: Dial 988
- Text: Text 988
- Available 24/7 for anyone in emotional distress
Crisis Text Line
- Text HOME to 741741
- Free, 24/7 crisis counseling via text
National Alliance on Mental Illness (NAMI)
- Website: nami.org
- Helpline: 1-800-950-NAMI (6264)
Psychology Today Therapist Finder
- Website: psychologytoday.com/us/therapists
- Search for therapists by specialty (cancer, chronic illness) and location
Man Cave Health
- Website: mancavehealth.org
- What they offer: Men's health education, prostate cancer awareness, community events
Sexual Health Resources
Sexual Medicine Society of North America
- Website: smsna.org
- Find a specialist in sexual medicine near you
International Society for Sexual Medicine
- Website: issm.info
- Patient education on sexual health after cancer treatment
American Association of Sexuality Educators, Counselors, and Therapists (AASECT)
- Website: aasect.org
- Find a certified sex therapist near you
Financial Assistance Programs
ZERO360 (from ZERO Cancer)
- Free comprehensive case management
- Help with insurance, co-pays, transportation, lodging, and financial planning
- Phone: 1-888-245-9455
Patient Advocate Foundation (PAF)
- Website: patientadvocate.org
- What they offer: Case management, co-pay relief, insurance appeals assistance, financial aid fund
- Phone: 1-800-532-5274
NeedyMeds
- Website: needymeds.org
- What they offer: Database of patient assistance programs, discount drug cards, free/low-cost clinic finder
RxAssist
- Website: rxassist.org
- What they offer: Database of pharmaceutical company patient assistance programs
Good Days (formerly Chronic Disease Fund)
- Website: mygooddays.org
- What they offer: Co-pay assistance for specific medications
HealthWell Foundation
- Website: healthwellfoundation.org
- What they offer: Co-pay and premium assistance for underinsured patients
PAN Foundation (Patient Access Network)
- Website: panfoundation.org
- What they offer: Financial assistance for out-of-pocket costs
Cancer Financial Assistance Coalition (CFAC)
- Website: cancerfac.org
- What they offer: Directory of organizations offering financial help to cancer patients
Social Security Disability Insurance (SSDI)
- Website: ssa.gov
- For patients unable to work due to cancer or treatment side effects
Family and Medical Leave Act (FMLA)
- Website: dol.gov/agencies/whd/fmla
- Protects your job for up to 12 weeks of unpaid leave for serious health conditions
Caregiver Support
Caregiver Action Network
- Website: caregiveraction.org
- Phone: 1-855-227-3640
- What they offer: Education, peer support, tips for caregivers
Family Caregiver Alliance
- Website: caregiver.org
- Phone: 1-800-445-8106
- What they offer: Information, online support groups, state-by-state resources
AARP Caregiving Resource Center
- Website: aarp.org/caregiving
- What they offer: Guides, tools, community forums, legal and financial resources
Lotsa Helping Hands
- Website: lotsahelpinghands.com
- What they offer: Free online tool to coordinate help from friends and family (meals, rides, visits)
Clinical Trial Resources
ClinicalTrials.gov
- Website: clinicaltrials.gov
- The most comprehensive database of clinical trials worldwide
National Cancer Institute Clinical Trials Search
- Website: cancer.gov/about-cancer/treatment/clinical-trials
- Phone: 1-800-4-CANCER
Prostate Cancer Clinical Trials Consortium (PCCTC)
- Website: pcctc.org
- Network of leading prostate cancer research centers
EmergingMed
- Website: emergingmed.com
- Free clinical trial matching service
Trusted Online Information Sources
National Comprehensive Cancer Network (NCCN) — Patient Guidelines
- Website: nccn.org/patients
- Free patient-friendly versions of the NCCN treatment guidelines
American Urological Association (AUA)
- Website: auanet.org
- Patient education: urologyhealth.org
American Society for Radiation Oncology (ASTRO)
- Website: astro.org
- Patient information: rtanswers.org
American Society of Clinical Oncology (ASCO)
- Website: cancer.net (patient-facing site)
- Comprehensive treatment information, coping resources, podcasts
Veterans Resources
Veterans Affairs (VA) Cancer Care
- Website: va.gov/health-care
- Phone: 1-877-222-8387
- What they offer: Cancer treatment at VA medical centers, Agent Orange registry, disability compensation for service-connected cancers
Agent Orange Registry
- For veterans exposed to Agent Orange — prostate cancer is a recognized service-connected condition
- Contact your local VA medical center to enroll
LGBTQ+ Resources
National LGBT Cancer Network
- Website: cancer-network.org
- What they offer: Cultural competency training, patient navigation, support for LGBTQ+ cancer patients
GLMA: Health Professionals Advancing LGBTQ+ Equality
- Website: glma.org
- Provider directory for LGBTQ+-friendly healthcare providers
Books (Recommended Reading)
- "Dr. Patrick Walsh's Guide to Surviving Prostate Cancer" — Patrick Walsh, MD (comprehensive, regularly updated)
- "The Definitive Guide to Prostate Cancer" — Aaron Katz, MD
- "Prostate Cancer: A Patient's Guide" — Prostate Cancer Research Institute
- "The Science of Living Well, Beyond Cancer" — Prostate Cancer Foundation (free download at pcf.org)
- "Man to Man: Surviving Prostate Cancer" — Michael Korda
- "A Woman's Guide to Prostate Cancer" — Barbara Rubin Wainrib (for partners)
Podcasts and Videos
- ZERO Cancer Podcast — Patient stories and expert interviews
- Prostate Cancer Foundation Videos — pcf.org/videos
- ASCO Cancer.Net Podcasts — cancer.net/podcasts
- Mark Scholz, MD (PCRI) — YouTube channel with detailed treatment discussions
Apps
- ZERO Prostate Cancer App — Track PSA, appointments, and connect with support
- My Cancer Coach — Treatment decision support
- CareZone — Medication management and health tracking
- Calm / Headspace — Meditation and stress management